It’s Sunday, July 24th. I’ve been home from the hospital since last Friday and am now finishing my roughest post-chemo week.
Rewind to discharge day, last Friday…After the spinal chemo I finished out the week fine. I didn’t develop a headache again which is great. Seems like the traumatic little needle and the new steroid does the trick. I finished my last chemo bag around 7:30pm Friday night, got my Neulasta injector on my arm and rode home!
This past week was pretty rough with side effects. I was having a lot of pain all over my body. My back, bones, skin. It was horrible. For a few days I can’t touch my body against anything. It feels like all of my bones are broken but I can still move and feel each one ache. It hurts to lay on my bed, put on clothes, put lotion on my body. Any touch to my skin is just the worst pain ever. If anyone accidentally touches me I just cry. This happened last time too but not till later in the week and not as intense as this time. Thank God for Oxycodone cause it’s the only thing that gives me some relief. I didn’t develop stomach pains as bad this time either, but still a little for several days. I have been much more tired and weak this round and it’s taking me longer to bounce back than the first two rounds. Most likely because of the increase in chemo.
After being home for about 8 days, I’m feeling much better and most of the side effects have subsided. I’ve been able to go out with my mom and boyfriend a little and also spent time with my sister, brother in law and nephew. The past few days my blood counts have been low so I’m not supposed to go out where there are lots of people with germs and stuff. My little brother got a cold so I took a little vacation stay at my sisters house so I wouldn’t get sick 😊After being stuck in my house for 7 days, being stuck in a new house was great!
Overall, the week was hard but I survived and that’s all that matters. 👍🏼 By the end of the week I almost always forget how horrible those first days home were. The best part of my two weeks home is that the first day home is really horrible and then each day is a little better and a little happier. By Sunday of the first week (today) I feel good again and then I realize that I have another entire week to enjoy now that I’m feeling better! 😊😊
Although my blood counts dropped low, they still didn’t drop low enough so most likely they will increase my chemo dose again by 20% for round 4. They want to make sure that it’s strong enough to kill any possible cancer cells left. I know that it’s for my own good in the long run, but knowing that each cycle gets more intense side effects when I come home makes me nervous. Because I am halfway done, I will have a PET scan this Thursday to check and see if there is any cancer left in my body. Technically it’s possible to develop new cancer tumors even while going through chemo, but it’s not likely. I asked my doctor straight up if he thought I would have any new cancer and he said no, he really didn’t. So that’s reassuring, but just the possibility scares me to death. I know it’s out of my control though, and I try to find comfort in the way God has helped me through this journey so far. All we can do it pray for a clear scan and that I can just finish my last 3 rounds as planned. Just 7 weeks and 6 days until I will be done with my 6th and final round of chemo. I gotta start planning something to celebrate 😁🎉