Well the past week was pretty amazing! I got to celebrate 4th of July with my boyfriend and family and then also drive to Savannah to see Gunnar from Thursday through Sunday before I had to come back to the hospital this week. These days I completely forget I even have cancer. I’m just having fun and living like I normally would. Here are some pics from 4th of July and adventures with Gunny….
WEEKEND IN SAVANNAH:☀️🚗🏖
Today is Wednesday! That means I’m already half way through my third round of chemo. 😊 I got here early Monday morning and got my port accessed and labs drawn and then most of the day was spent waiting for my chemo to get started. Because my doctor was on vacation until Thursday, another doctor was taking over for the beginning of the week and I didn’t end up starting my first chemo bags till 9:30pm 😳 I was also really disappointed to find out that they were increasing my chemo by 20% again because my blood counts only dropped to 700, and in order for them to keep the chemo at its previous strength they needed to drop to at least 500. This makes me really nervous because last time they increased it and when I got home I had a lot harder side effects like bad stomach pain, bone pain and nerve issues where my skin hurt all over. Increasing it again most likely means it will be a bit worse this time. But hopefully my counts will drop really low, anywhere between 500 and 0, so next time they don’t have to increase it again. The reason they want my blood counts to drop so low is because the more of my white blood cells they kill off, the more aggressively they are killing any possible cancer cells remaining in my body.
Monday night I ate good and also used the bike in my room to ride a few miles and keep my muscles alive. After Wednesday I don’t get out of bed much so I try and get up and about as much as I can the first two days. Tuesday is always an easy day. I woke up and had breakfast, washed up and got changed, met with my doctors, went for a good walk, and then my sister and nephew came to visit. The doctors all keep telling me how great I’m really doing with the chemo and how sure they are that I will completely recover from it which is always encouraging. The doctors both said that they would talk about giving me some drugs and monitoring me during my spinal chemo this time because it was so traumatic for me last time and they don’t want me to suffer since I still have to do it 4 more times 😢
Well, today is Wednesday morning. I slept pretty good last night and am still feeling ok. It’s about 6am as I write this. My nurse usually wakes me up around 5am to take blood for labs from my port and check my vitals. I’m always really anxious today until my spinal chemo. Hoping that they really will give me something to relax me this time like they all said they would. Fingers crossed!! I’m scheduled to go down around 12:30pm. Gonna try and go back to sleep for a bit now😴………………………………………..
I survived another intrathecal chemo. Barely..They gave me some Ativan before I went down to help me relax but when you know you’re about to get multiple needles in your back and spine it doesn’t really help. Once again it was horrible and painful. Full of crying and hyperventilating that they had to put me on oxygen and asked if I wanted to stop for the day. They ended up having to move up to a different spot on my spine and start all over because the original spot had been used too many times and had scar tissue or something. So after I had already been numbed and stuck in one spot, they started one on another spot and numbed it and put the needle in and administered the chemo. So an hour and a half later I am back in my room laying flat for the next two hours, dealing with a little post traumatic stress while my mom feeds me lunch. All the nurses and especially mommy are always heartbroken watching me suffer 😢
It sucked, but I was a fighter. I didn’t make them stop and I let them finish all the way cause I know how important it is for me to get that medicine. I just kept breathing and biting on my special blankie shirt to keep me from crying so hard. And squeezed my nurses hand who has been there for all of them so far. I pray that I once again will not get a spinal headache because they still used a smaller needle and are keeping me on another steroid to help prevent the headache too. I’ll know by the end of today or tomorrow if it worked!
That is usually the worst part of my week so I’m glad it’s over! The doctors are still trying to figure out things to help with my side effects once I get home. The stomach pain, the skin sensitivity, some bone pain. The naturopath has suggested some supplements that can help with these if I can get them approved by my Doctor P. He has been on vacation but should be back tomorrow!
Hoping the next few days will run smoothly with little nausea and pain. And especially no spinal headache!! I have had wonderful nurses this round and really appreciate the extra love and comfort they give to me, just like I am their own child 💗 It really does make a difference.
Once I get home, the side effects usually hit pretty hard and the first week is pretty miserable with me and spent mostly in bed. Last time it was great to have no spinal headache, but in its place I had horrible stomach pain that kept me in bed with a heating pad for days. Hopefully they will be able to give me some new supplements to support my body in fighting through these side effects this time! I’m hangin in there! 😊
———————————-Hospital Address: 🏥 Here M-F, Weeks of July 11, August 1, August 22, September 12.
Cancer Treatment Centers of America at Southeastern Regional Medical Center
600 Celebrate Life Parkway
Newnan, GA 30265
4258 Shipyard Trace NE
Roswell, GA 30075