Made it through my second round of chemo! Overall the 5 days in the hospital were better than my first round. The first two days are always pretty easy and they got my meds hooked up earlier so they didn’t get changed out at midnight like last round 🙂 Wednesday I got my second dose of the spinal chemo that I was having a ton of anxiety over. The doctors all met and talked a lot over my case the the anesthesiologist who did it is like an expert on tricky needle situations. They decided to try a smaller needle and a different shape needle (pencil needle?) so I wouldn’t get a spinal headache from the leaking of the fluid again. And it worked!! No headache!! 🙏🏼🙏🏼
The actual procedure itself was probably the worst thing I’ve eve experienced in my life though. They said smaller needle meant I probably wouldn’t feel it as much! 🙄 Won’t feel it my butt! I cried and screamed for nearly an hour and yelled at him to stop more than twice. And they apparently can’t put you to sleep. The smaller needle is also more tricky to position and takes longer and I kept feeling it and just screaming. I’m sure the whole hall could hear me 😁 I had two sweet nurses, one at the top holding my hands and head and one rubbing my legs. You’re not supposed to move or they have to reposition the needle again so I just cried basically the entire time. I can’t quite describe the feeling of a needle going through your back and into your spinal cavity but I really don’t think there’s anything else to compare it to. Worst thing ever. BUT! after a few hours when no headache came, I completely forgot how bad it was. 😊 I will remember again..the next 4 times..lol but it might have actually been worth it to not have a spinal headache for 9 days!
The rest of the week was average. I struggled a lot more with nausea, especially Wednesday this round but still ate a lot more than last time since I was actually able to sit up! The steroids didn’t make me quite as mean and irritable this time which was good for everyone lol Especially my mom who stays with me all week long! I don’t have any pictures of her to post from this round, but she’s literally my arms and legs through the whole time and I wouldn’t make it without her 💗 She helps me eat, drink, get up to the bathroom, pick up everything I annoyingly drop off my bed, rubs me when my body aches, calls my nurses when they don’t come fast, sits on my bed when I’m lonely or need to cry and just everything else I could possibly need 😢😘 I love her more than the world!
Thursday and Friday I slept and laid in bed a lot and walked around a little. Also met my neighbor man who is going through the same chemo treatment as me, but is one round ahead so it was good to talk to him! His sweet wife got me chickfila Thursay night and I ate every bite 😁 Thank you nausea pills and Mrs. Hamilton! 😘
Also had a little washcloth rub down and some clean clothes 😂 Luckily with not much hair I never feel really dirty anymore! Late Thursday night, the boyfriend got there which always makes the last day go by faster. I ate more chickfila for breakfast and then Olive Garden for dinner! So many random cravings from the chemo meds and steroids.
Friday went by pretty quickly! My dad came and everyone just waited for my last meds to end so we could go home! Got to see my favorite nurse Mardell before I left which was the perfect ending to my week. She makes everything not so horrible 💗 Got my last belly shot and then my Neulasta patch on my arm which automatically injects me with medicine to help my white blood cell counts come back faster. It beeps and goes off 27 hours after my chemo is done and then I just take it off 👍🏼 I hate it. Lol the anticipation kills me!
This Friday I walked out of my room and to the car all by myself which was an amazing turn around from not being able to even sit up in a wheelchair and laying in the backseat after the first round! Gunnar and I stopped and got fried rice and won ton soup 😂 (another craving) and then it was home for bed!
Then…..SATURDAY was horrible. Not sure what happened but I crashed hard all day and had horrible stomach aches and nausea. We had to make me a bed on the bathroom floor and then I just took Ativan to knock me out finally. It was bad and scary for everyone. But happily Sunday was good and I was able to get up and make myself breakfast and watch tv most of the day. I was feeling so good that I decide to go surprise the family I nannied for at the baby’s 2nd birthday party! It was great and there were tears all around 🎈😘😢❤️ It was so good to see them and have some happiness!
•Today is Monday, June 27th 2016. It was an alright day too. I got my blood labs drawn and Starbucks then was home hanging out. I’m having a lot of stomach issues off and on all day but heating pads seem to help a little. Also the dreaded mouth sores are starting and I can tell it’s going to be really hard. It’s like having canker sores all inside your cheeks and mouth and my gums are sore too 😩 You can’t really prevent them except to use mouthwash and then the pharmacy can mix you up “magic mouth wash” to help numb your mouth so you can eat and stuff. Prayers that they won’t get too horrible yet! I still have a long way to go! But I just went to the dentist today to make sure my teeth were good since chemo can cause more teeth problems and he said all is good 😁😁 Celebrated with some frozen yogurt and a trip to publix all by myself 👍🏼❤️
So that’s about all for now. I’ll be home for this week and then the next! Hopefully get to celebrate 4th of July feeling good and then back to the hospital for round 3 on July 11! 👍🏼🎉 Thanks as always for the continued prayers and support! Main prayer request for the time being is the mouth sores and stomach aches. 🙏🏼🙏🏼