It’s the morning of day 2 of my second round of dose adjusted R-EPOCH chemo. Dose adjusted means that they can change the dose according to how I respond the previous time. After my round one my blood counts didn’t drop very much so this time they are increasing the chemo drugs by 20%. This means I will most likely have a harder time with side effects this round and my counts will drop much lower the week after I go home from chemo. When they drop this low I will have a lot of fatigue and more risk of infection if I’m not careful. The reason they want to do the increase in the dose is to make sure the chemo is strong enough to kill any tough little cancer cells.
After round 1, I was home for 2 weeks. The first week I was home I still had my horrible spinal headache and hardly got up at all. I literally crawled to go anywhere and then instantly laid back down. I had to eat my food laying on the floor and I also was getting bad stomach aches every time I ate. After the first week I improved significantly and was able to go out that weekend with Gunnar and get my hair cut off and go shopping 🙂
The second week I was home was much better and I had a lot more energy and good days where I could do stuff. My hair started to come out and I kept pulling it out whenever I was sitting around lol it really wasn’t that scary, it was more just annoying. This past weekend before I had to come back to the hospital I drove 5 hours to see Gunnar in Savannah! (Oh ya, he finally asked me to be his girlfriend after all these years..I said yes 😉) Before I left my house again I shaved my head shorter but after a day it was so pokey it was driving me crazy and I kept pulling it out all over the floor lol so on Friday after I showered, I decided to use Gunnar’s razor and shave it all off. It was such a relief to have it gone and I don’t look half bad bald lol. We went to the beach on Saturday and I sun screened my head and walked around a little without my hat so I could try and tan it a little 😂 it’s so pale! Haha. It was really good to spend the weekend having fun before I came back to the hospital.
Anyways..I love having no more hair. It’s so nice for the hospital since I can’t always shower and it’s nice to not have to wait for it to fall out anymore. It also cools you off in the summer really fast when I take off my hats. Plus it will come back eventually 😊
So yesterday, Monday June 21st, 2016, day one of my second round of chemo went quite well. I got in and hooked up a lot earlier than my first round which means that I won’t have to get my meds switched out at midnight all week! It will be around 5pm every day. So much better. The first drug called Rituxan started and I slept through nearly all of it without having a bad reaction like last time, so they got to speed up the drip and it was done in just a few hours. Now I’m on my second bags which are 3 different chemo drugs at the same time, on a 23 hour cycle. When they are done, they are repeated 3 more times until Friday. Also my favorite night nurse Mardel was here last night and this morning and came in and gave me a hug 😊I seriously love her. She always makes me feel better and taken care of. She’s a million times better than all the other nurses I have. 💗 Tomorrow (Wednesday) sometime I have the horrible dreaded intrathecal chemo. They are going to do the blood patch at the same time and I’ve requested to be sedated because I’ve had a lot of anxiety about the chemo and procedure. I just don’t want to feel it, so they said anesthesia can put me to sleep a little like they have for other things. Yay 🙂 Everyone is praying that doing the blood patch will save me from having that horrible headache and the rest of the week will run a lot smoother than last time! No headache would mean I could sit up and actually eat, walk around so I don’t get weak and not get constipated from not moving which can be dangerous while on chemo. I really really hope it’s better this time😳 I will update once I see what happens. Fingers crossed!
🙏🏼Some people have asked me to post prayer requests for the week so here they are:
⭐️⭐️No headache from the spinal chemo so I can stay active and not get weak from not walking all week
-That I will be able to eat through the nausea so I don’t lose more weight
-That the steroids won’t make me super irritable and mean to everyone, especially my mom 😘
-I won’t have significant side effects, the main one is mouth sores that make it painful to eat on top of already not having an appetite. Also no stomach aches like last time.
-Good nurses who are nice and attentive and actually come when my machine beeps and when I push my call button.
-For all the doctors and nurses who work with me throughout the week, that they make the right decisions for me and make no mistakes during procedures and my treatment.
-Give peace, hope and strength to all of my family and friends who struggle to see me go through this. For my dad who stays home with my brother and works hard all week so that I can be here getting treatment and my mom can stay with me.