“You’re Too Young to be Here”..

I’ve heard that a lot over the past few weeks. Everywhere I go. Every hospital waiting room. Every oncologist patient room. Every blood lab room. Every time I go anywhere and have to explain what’s going on…followed by everyone saying man, you’re too young to be here. And I reply with “yes..I am..or at least I thought I was..”

It’s been about 2 weeks since I first received the news. That my abnormal swollen tonsil that I had removed was in fact positive for B-Cell Non-Hodgkin Lymphoma.  When the ENT Dr. called to tell me and told me he was referring me to an oncologist it didn’t really process. I quickly called my dad and told him..then my sister…then my mom..a few other people. Each of who responded in their appropriate ways. Calm assurance that I would be ok, hysterical cries, repetitive apologies.  I felt almost bad for putting people in the awkward situation of not knowing what to say but at the same time I just wanted to feel not alone for that second. That was May 10, 2016. It’s been just over 2 weeks and I could have sworn it’s been more. Here are the events of the past 2 weeks:

 

Last family photo before the news
 
May 12: (2 days after the initial call) I met with my first oncologist who confirmed that I have a Diffuse Large B-Cell Non-Hodgkins Lymphoma. He gave us the basic information that it was a fast growing aggressive blood cancer and wanted to order tests to get more info.

May 16: Arrive at the hospital at 6:45am for my bone marrow biopsy. (I was terrified after watching YouTube videos-note to anyone who ever has to get one, don’t watch!) The actual procedure involves lying on your stomach while they put a needle into the pack of your hip bone, first to draw some bone marrow fluid, and then using a special tool they scrape an actual piece of your bone off.  Luckily I got sedated and was sleep for the entire thing! Highly recommended 🙂 I was just sore for a day or two. 

Daddy feeding me jello after my Bone Marrow Biopsy
  
 May 17: Met with a fertility specialist about egg preservation. Because chemo drugs are toxic and kill healthy cells in your body, including eggs, it was important for me to save my eggs incase the chemo made me unable to have babies. Basically what they do is prepare your eggs to the state where they would be mature, and then remove them surgically and freeze them until you are healthy again. (Begin daily fertility injections. yay..)

May 18: Arrive at the hospital at 2:30pm for my PET scan. They inject you with radioactive fluid that has glucose in it because cancer cells like glucose and will light up on the scan. After waiting for an hour for the radioactive stuff to kick in, I laid in the machine for about 15 mins and got the scan done. Piece of cake 🙂 
  

I’m gonna have a large collection of these socks

 

May 19: Meet again with my oncologist to see what results he got from the scans. News: the bone marrow biopsy and the PET scan came back clean. We thought this was maybe good news, meaning that the cancer was gone and I just wouldn’t have to do anything else since the tonsil had already been removed. 

*However* the type of cancer I have is aggressive and fast spreading. So even though at the second of the scans nothing showed up, it doesn’t mean that I’m clear. My particular form of B-Cell Non-Hodgkins Lymphoma is especially aggressive because it is a “double expresser”, meaning that a couple certain genes are present that make it faster growing and harder to treat. (Feel free to look it up cause it confuses me too lol) There is a large chance of it being in my body still and spreading other places. So even though my cancer was only in the tonsils and technically considered a stage 1, they have to treat it super aggressively up front so there is less of a chance of me relapsing. 

May 23: We got a second opinion from an Oncologist at Emory. He basically confirmed that my type of cancer is a “double expresser” and is aggressive. The other oncologist wasn’t positive on which chemo to use to treat me, but this doctor confirmed that he would treat me with R-EPOCH chemo. This regimine is getting hospitalized for 5 days at a time and getting 24 hr chemo infusions. Then going home for 2 weeks. Then returning to the hospital another 5 days. I would do this for 3 or 4 rounds. So about 9 weeks. Followed with radiation to the neck where my original cancer cells started in my tonsils.  

May 24 (yeaterday): I got a lumbar puncture to test for cancer cells in the central nervous system. I was nervous although it wasn’t horrible. The worst part was the nurse not getting the IV in my arm the first time cause I had blood drawn earlier and it wouldn’t go in right and I cried for like 10 mins. After that she was able to get in in fine and no more killing me 🙂 I was taken back to an x-Ray machine and laid on my stomach while the doctor found the best vertebrae to stick the needle between. Then she gave me a numbing shot in my back first, followed by a long skinny needle into the spinal cavity until the fluid started dripping and was collected. It was actually painless which was a nice surprise 😁 

Post Lumbar Puncture
  

 

…..SO right now we are waiting to go to Cancer Treatment Centers of America in Newnan, GA on Friday to see what we think of it and get a third opinion. After we decide where I am getting treatment, I will have surgery to get my port put in my chest and then begin chemo. 

I just wanted to track my journey kicking cancers butt and all are welcome to follow along and leave me comments or questions. It’s going to be hard and exhausting in every way but I believe that God has more to my story and that I will get through this and have many many healthy years ahead! ❤️

   
 

32 thoughts on ““You’re Too Young to be Here”..

  1. Megan–I am a very good friend of Spencer’s Mom, Becky. Just wanted you to know that many, many people, who you don’t even know, are fervently praying for you as you continue this journey to kicking cancer in the butt! Prayers and guidance as you make decisions for the best course of treatment for you! I will be following your story and will be looking forward to reading that you are “all clear” in a couple of months.

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  2. You are constantly in my thoughts and continually in my prayers. I will be following you journey through all of this. You will kick cancers butt!! Love you💜#cancersucks

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  3. Your positive attitude radiates throughout your posting. Your faith in God shines brightly. You have and are facing some difficult times, BUT……you WILL get through them and will encourage others as you do. Praying for you.

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  4. Hey Megan. This is Kelly Lynch’s Mom. I’m so sorry you are having to go throug this. Many prayers for you Miss Too Young. It absolutely breaks my heart when someone so young has to deal with such a serious health issue. But you can do it! I have been fighting cancer for many years (first diagnosis in 2000) and am still here to pray for you. Praise God! Please keep us updated and ask for anything you need. Blessings – Kristin.

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  5. I’m one of Ashley’s Coaches and we are over here praying for You every day. You are to young, but you are also strong and have the best support system you could ever have. You will kick cancer in the butt!!! Sending love and prayers 💕

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  6. I happened to see your blog and am very touched by it. I was diagnosed with lymphoma at 28 years old. I had a 5 month old baby at the time. I was also told I was going to have chemo and radiation (also in the neck) and that, because of the chemo, I probably wouldn’t have any more kids. My entire treatment took about 5 months, and I’m not going to lie, it was rough. Luckily, I was blessed with a very supportive husband, family, and friends, and, by the grace of God, I made it through. That was almost 4 years ago. I have been cancer free for 3 years and I also have been blessed with a beautiful baby, who is now 3 months old.

    You will also make it through this. It will be hard, but lean on those who are around you. I will be praying for you during your journey. Please feel free to email me if you would like.

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  7. Megan, you may not remember me, but probably you remember my son, Stephen. We used to live around the corner from your family. I want you to know that I am praying for your complete healing and full recovery as you go through this. You are a fighter and I am thankful your amazing family will be by your side every step of the way. -Jean Wright

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  8. Megan,
    We are friends of your parents and met you when we lived in Atlanta. You were very little! Ryan was just an infant when we moved away to Florida. We now live in Pittsburgh. We are in prayer for you and will be throughout your journey. I am sure your pretty face will bring the light of Jesus wherever you go throughout your treatments. God has a divine appointment for you through this battle, and in the end He will reign victorious through you! Be brave, be strong and lean on Him. He will carry you through this.
    Xoxo
    Brian and Joy Howard

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  9. We are praying for you during this difficult journey. Thankful for a God who will be with you every step of the way and for your amazing support team (family and friends). With Jesus, NOTHING is impossible! 🙏💕

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  10. Hi Megan. My name is Brenda. I am so glad to have found you but not glad you have cancer 😦 Mine was in my right tonsil too and I hade b cell unclassifiable a combo DLBCL and Burkitts. I am 3 years out and doing great. You will do great! You are in my thoughts and prayers. If you need anything let me know:)

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  11. Praying for you sweet girl! So sorry that you have to go through this journey but I know God will bring you through it! You have an awesome family and friends to support you which is a blessing!

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  12. Hey Megan!
    Wow! What roller coaster. I am Suami, Danishias sister 😊 I just want you to know that you are in out thoughts and prayers. Keep your heart strong and remember that our place is to beleive and trust. He will do the rest. He is in complete control. Kick some butt girl! Hugs from Houston TX.

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  13. Hi Megan, you don’t know me, and to be honest I have no idea what link I clicked that brought me to your page. Let’s just call it a God thing. Speaking of which… WOW, he broke the mold when he made you darling. You are such an inspiration not only through your courage but through the joy and peace you show in the midst of it all. Thank you. I can’t imagine everything you are dealing with or feeling as I haven’t been through it but I promise to pray for you every chance I get and ask the Father to give you whatever you need most in that unique way only he can.

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  14. Dear sweet Megan,

    I just wanted to reach out and tell you I love you and am praying for you. I enjoyed the strength, courage and smiles that radiate from you in your blog. It gives me great solace to know how much you love God and that you have not only an amazing family but HIM to lean on. You look beautiful:) Please keep posting and we will keep the prayers coming. Much, much love- Jessica Butcher ( Mrs. Butcher/ FCS/ 8thgr)

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  15. Dear Megan, Thank you for your willingness to share your journey with so many. You are a warrior and will be touching more lives than you may ever know. Your faith, your positive attitude, your openness are all amazing gifts. I want you to know you are in my prayers. There is nothing you can’t face with God and your precious family/friends by your side. You are loved beyond measure by Him and He will strengthen you, use you, and help you every step of this journey. With much love, Amy Conrod

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  16. Thank you all for your kind words of encouragement and all the prayers already prayed and those yet to be said. I really appreciate it! I believe that God hears us all and will hold me in his arms as I fight this battle (clearly not alone :)) I have no doubt in my mind that He has bigger plans for me than this! Just a small bump in the road ❤️

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  17. Megan,
    I am Steven’s sister and Debbie’s sister in law. Your positive attitude and courageous spirit will take you far in your healing journey. I am sending all my good thoughts and wishes to you for a quick and comfortable recovery. You’ve got this! 😊❤️

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  18. Oh sweet little girl. I have invited so many of my friends and family to join in prayer for you . God is good and He will see you and your family through this. I’m praying with out ceasing… Love , Tia Becky

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  19. Megan, I am a friend of your mom’s and your Aunt Susan. From the moment I heard about your diagnosis I hit my knees praying for you. I know the power of prayer and I believe that God will go before you and give you the strength to fight this battle with everything you’ve got! You are not alone on this journey. Know that each step you take God is right there with you and I believe that you will overcome this illness. Know how many people are holding you up in prayer. I can’t wait to see your victory post! I will be following your journey.💕What a beautiful, brave strong woman of God you are! Stay focused on God’s word…I know he has a great plan for you! This is just the beginning of your story. Blessings and strength to you. You can do this in God’s strength. Philippians 4:13

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  20. Megan,
    We haven’t met yet but Laura has told me so many wonderful things about you and any friend of hers is a friend of mine. Your strength is admirable and your smile exudes confidence. It is clear that you have many prayer warriors behind your every step and a new one has been added. Your blog is courageous and I thank you for sharing your journey with us. We will all be by your side as you beat this monster. Thinking of you, Nellie

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  21. Keep up that beautiful smile and great attitude. The tests so far very positive. Good luck in the future, I know you will bet it.

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  22. You know our family is praying for you sweet girl! You will kick this ugly disease and have an awesome testimony to go with it!
    Love you❤️
    Melanie Eubanks!

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  23. Megan,
    The prayer angels here are in your corner and will be until you are back on your feet like we know you will be!
    Norm

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  24. Megan,
    I haven’t met you, but you are amazingly strong, positive and wise beyond your years. My husband used to work with your dad :-). I’m hoping for a painless, speedy and supportive recovery for you – thinking of you.
    Robin Mellie

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  25. Megan, The Light than shines out of you is not just a bright light, it’s galactic!!! You will beat this! Our family has been praying in Jesus’s name for your complete recovery and protection from any cancer cell ever developing in your body again. Your high energy, humor, and relentless determination is inspiring and remarkable. God does have even bigger plans for you and all the thousands and thousands of days He has orchestrated for you on this earth!
    Praying for you always!
    Janet Clark
    FCA 5th Grade Teacher Assistant💖

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  26. Megan –
    You have been in my prayers since I first heard the news. Your bravery and your trust in God is inspiring –
    “Because of the Lord’s great love we are not consumed, for his compassions never fail. They are new every morning; great is Your faithfulness. Lamentations 3:22-23
    Praying for you to have a peaceful night.

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  27. Megan-
    Your mom and I used to teach preschool together at Cornerstone. I saw her post on Facebook and have been praying for you since. I let the staff at Cornerstone know, too, and we have included you in our prayer circle. Know that there are many people praying for you and your strength to fight through this! You can do it!

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  28. Hi Meghan,
    Just letting you know I am praying for you. Before I read the blog the other day, I had been praying for a couple of days for you to check out the cancer treatment center of America and for you to seek counsel on the fertility side of things. So glad that you have good doctors and picked a place you feel comfortable with. And I will be praying for you as you face challenges in the days ahead. May God grant you new mercies every morning and meet you each step of the way.

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  29. I was introduced to your journey by your sister Ashley and I am so truly inspired by you. I am a young adult cancer survivor myself and wish, at that time (9 years ago), I had the courage to share my story and journey like you are. You are an inspiration to many right now! Praying for you and looking forward to seeing you kick cancer’s butt!

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